In collaboration with United Network for Organ Sharing (UNOS), the Starzl Network for Excellence in Pediatric Transplantation is pleased to announce the launch of an innovative data mart that will allow for a pediatric transplant dashboard and data portal that will include center-specific transplant data elements from participating Starzl Network sites and key aggregate national data on waitlist and transplant outcomes and network priority areas of immunosuppression, perioperative practices, quality of life, and transition of care.
“As the Network works to accelerate progress in pediatric transplantation, transplant teams need to be able to visualize key dashboards on focus areas for the Network and also leverage the significant data already available in the UNOS database.” said George V. Mazariegos, Chief of Pediatric Transplantation at UPMC Children’s Hospital of Pittsburgh and Chair of the Starzl Network. “We are excited that this 5-year pilot program with UNOS will be the springboard to ongoing learning and faster implementation of best practices for all. It’s been a pleasure to work with UNOS programmers and data specialists to bring our vision for innovative transplant data visualization to life.”
“UNOS is proud to partner with the Starzl Network on this innovative approach to improve the outcomes of pediatric liver patients,” said Sarah Taranto, Transplant Analytics Service Line Leader at UNOS. “As a data-driven organization working in partnership with leaders in research and science, we are continuously in search of innovations that increase performance and efficiencies within transplant.”
Founded in 2017 through a generous gift of Citrone 33, the Starzl Network for Excellence in Pediatric Transplantation honors the life and legacy of Thomas E. Starzl, MD, PhD, recognized as the father of transplantation, and carries on his work of discovery and lifesaving innovation. The Starzl Network aims to unite a community of top pediatric liver transplant centers in the United States and Canada that are committed to developing and sharing best practices.
Member institutions include AdventHealth for Children, Children’s Healthcare of Atlanta, Columbia University Medical Center, Lurie Children’s Hospital of Chicago, Mt. Sinai Health System, Seattle Children’s Hospital, Toronto SickKids, University of Virginia Hospital, UCSF Benioff Children’s Hospital, and UPMC Children’s Hospital of Pittsburgh. United Network for Organ Sharing (UNOS) is the mission-driven non-profit serving as the nation’s transplant system under contract with the federal government. We lead the network of transplant hospitals, organ procurement organizations, and thousands of volunteers who are dedicated to honoring the gifts of life entrusted to us and to making lifesaving transplants possible for patients in need. Working together, we leverage data and advances in science and technology to continuously strengthen the system, increase the number of organs recovered and the number of transplants performed, and ensure patients across the nation have equitable access to transplant.
The Starzl Network’s mission is to unite big data, technology, patient advocacy, and transplant thought leaders to deliver the best possible care and develop new, scalable solutions to pediatric transplantation’s most challenging problems. For more information, please visit: starzlnetwork.org