Collaboration

Collaboration with other transplant-related organizations

The Starzl Network for Excellence in Pediatric Transplantation aims to give all children access to the best care. And we strive to continually “make the best better.”

Our goal, as Dr. Starzl hoped, is to measure children’s outcomes not in years or even decades, but in lifetimes. We invite transplant families to join us in this quest.

We understand that we cannot achieve this goal on our own. We have collaborated with many other transplant organizations for projects and other expertise. Please visit the following organizations for additional information on their mission.

PFV Mission

The Starzl Network for Excellence in Pediatric Transplantation Patient & Family Voice serves to support and unite the global pediatric transplant community through collaboration with transplant community stakeholders to develop and implement innovative ideas to advocate and improve the lives of all pediatric pre- and post-transplant patients and their families.

Collaborating Organizations

ACTION

Alagille Syndrome

Alliance

BARE

Transplant Families

Improving Renal Outcomes Collaborative

ACTION unites and connects our global healthcare community to improve outcomes for patients with heart failure.

Learn more: https://www.actionlearningnetwork.org/

Mission: “Mobilizing resources, facilitating connections, promoting unity, and advocating for a cure to inspire, empower, and enrich the lives of people affected by Alagille Syndrome.”

Learn more: https://alagille.org/

As a national organization, we strive to facilitate connections within our community and empower our physicians and scientists to find answers and a cure for children and families affected by biliary atresia.

Learn more: https://www.bareinc.org/

At Transplant Families, well-being is at the forefront of what we’re working together towards. We are transplant families just like you. Our kids have seen more in childhood than most of us will in a lifetime. 

Learn more: https://www.transplantfamilies.org/

Lucas’ Story

Shortly after he was born, Lucas Goeller of Pittsburgh, Pa., developed biliary atresia. The rare disease restricts the bile ducts in the liver, causing organ failure and requiring a transplant.

Lucas was under the care of a team of experts at UPMC Children’s Hospital of Pittsburgh. But as months went on, his illness got worse.

Lucas’s family started a public campaign to find a liver donor. A family in Nebraska whose daughter had a terminal brain stem tumor donated her liver to Lucas.

After 18 months, he had a life-saving liver transplant.

Thanks to his donor and transplant team, Lucas enjoys playing with his brothers and attending school - he just started kindergarten.