The Henry L. Hillman Foundation is contributing $750,000 in support of the Starzl Network for Excellence in Pediatric Transplantation, www.starzlnetwork.org, at UPMC Children’s Hospital of Pittsburgh. This grant will support DARE, an initiative aiming to enhance the Starzl Network’s ability to transparently share data and streamline best practices in pediatric transplantation.
DARE (which stands for Datamart, Adaptive tRial and patient Engagement) will catalyze three critical areas in the Starzl Network’s transplant learning collaborative:
1) new models in transparent transplant data benchmarking;
2) development of an innovative adaptive trial design platform; and
3) synergies that increase patient-reported outcomes to frame comparative effectiveness research to better inform the field of pediatric transplantation.
The Henry L. Hillman Foundation has been a critical partner of the UPMC Children’s Hospital transplant program since establishing the Hillman Center for Pediatric Transplantation in 2005. This grant will build upon that transformational legacy by providing critical and strategic support to advance the international impact of the Starzl Network in advancing best practices for children receiving transplant care in North America and beyond.
The Starzl Network’s mission is to unite big data, technology, patient advocacy, and transplant thought leaders to deliver the best possible care and develop new, scalable solutions to pediatric transplantation’s most challenging problems. For more information, please visit: starzlnetwork.org