PARTNER: PAtient-centered Research in pediatric TransplaNt-Engaging families+Recipients
The Starzl Network for Excellence in Pediatric Transplantation in collaboration with UPMC Children’s Hospital of Pittsburgh, UCSF Benioff Children’s Hospital, Starzl Network Patient & Family Voice, and Transplant Families recently received a Patient Centered Outcomes Research Institute (PCORI) Eugene Washington Engagement Award. The two-year award will support our project, PAtient-centered Research in pediatric TransplaNt-Engaging families+Recipients (PARTNER).
PARTNER represents a novel effort in the field of transplantation: it is co-led by parents of transplant recipients and healthcare providers. In PARTNER, we seek to build on the established bonds between providers and patient partners, using the infrastructure and partnerships of the Starzl Network and Transplant Families to expand from personal relationships into organizational partnerships with shared priorities, knowledge, and a sustainable capacity to do collaborative patient-centered outcomes research (PCOR).
For full project details, please visit https://starzlnetwork.org/partner/
What is patient-centered, community-engaged research? How do we do this to improve the lives of kids with liver transplants?
Starzl Network Guiding Principles
Improving the Transplant Journey
Who are the key stakeholders in Starzl Network patient-centered research about pediatric liver transplant?
If your child did participate in a research study, did you ever find out study results? How?