The State of the Science of Solid Organ Transplantation and Disability: A Workshop

Resource Category: Other Helpful Resources

Resource Type: Info Sheet

Age of Child: <5, 6-12, 13+

Years Since Transplant: <2, 3-5, 5+

In response to a request from the Social Security Administration (SSA), a planning committee of the National Academies of Sciences, Engineering, and Medicine (the National Academies) organized and hosted a 1.5-day public workshop on March 22nd, 2021 from 12:30-5:15PM and March 23rd, 2021 from 10AM - 2:15PM ET that examined disability associated with organ transplantation. In particular, the workshop included presentations on the functional outcomes for individuals who are recipients of organ transplants: including those of the kidney, liver, heart, and lung.

The workshop featured invited presentations and panel discussions on topics that included:

  • Processes conducted to identify transplant recipients with the highest probability of positive post-transplantation outcomes,
  • Current outcome measures for assessing effectiveness of care for individuals who have received organ transplantation (for example, morbidity and mortality);
  • Treatments used to improve a person’s physical or mental functioning following organ transplant, and the settings in which the treatments are provided;
  • The typical length of time from transplant surgery until the person’s functioning improves to the point of which the condition is no longer disabling, and specific ages or other recipient traits where improvement is more likely;
  • Laboratory or other findings used to assess medical and functional improvement after organ transplant; and
  • Recent medical advances or new technologies that may alter expected patient outcomes, and potential advances anticipated in the near future.